The time for a cure is NOW

Last night I lay in bed wearing my DRI “Cure” t-shirt and wished for a cure more than I ever have. 

We were headed home after two weeks on the road.  Diabetes had kicked us pretty hard as I will explain in upcoming posts.  We were on a boat and had a 14 hour crossing ahead of us.  I brought up insulin, an infusion set, and syringes.  I thought we were all set. 
A site change was past due. When we settled into our cabin for the night, I had my son do a site change.  A few hours later I awoke to him getting up to use the washroom.  Either we had yet another bad site or he didn’t bolus enough for his earlier snack. I rolled over and went back to sleep confident that he was taking care of things.

An hour or so later, I could hear my son up yet again.  I knew that things were not good. I got up to hear the splash of him vomiting into the toilet. CRAP! This was not good.  I dug through our supplies and quickly realized that I had left my glasses down in our vehicle.  Squinting, I looked for syringe and insulin. I also tried to find a new site…there wasn’t one.  Crap was quickly upgraded to another four letter word!

I injected a correction and my son began to apologize for waking us up.  I wanted to cry.  I told him that it was not his fault.  It was diabetes.  It sucks but there was nothing we could do to prevent the site failure.  He said that he had tried to creep around but had banged about a few times. Again, we said that there was no need to worry about it. We would worry instead about getting his readings down.

We all finally nodded off back to sleep. I could hear my son breathing across the room from me and knew that he was finally resting. He had said that he was coming back down before the injection so hopefully between the two he would be good to go. That’s when I laid down and thought it was ironic that the shirt I was wearing to bed that night said “CURE”. 

I have never held out a lot of hope for a cure.  My son has.  After two weeks of diabetes doing all it could to curtail a lovely family vacation, I really want it gone. We have put in our time. I can only imagine what it keeps doing to my son’s body. Its time to check out this guide and find a cure. We have waited long enough.


Factory Recall

“Don’t forget to bolus for that.”
“Me? Don’t worry, I am making my own insulin these days!”
“Yeah right!”
“Seriously. Why couldn’t my pancreas just start working?”
“Can you grow a new heart? A new lung? A new leg if I cut it off?”
“I don’t know. “
“You don’t know? Of course you can’t. When they are gone they are gone just like your pancreas. Does not work.  Stick up the out of order sign. Done. Finished. Capput!”
“Yeah, but I was only two! What kind of a pancreas gives up at two?”
“I wish I knew.”
“Well that’s just stupid. I only had a pancreas for two years and it will never work again??”
“Be thankful you got two years. Some people get less than that.”
“Well that just isn’t right.”
“You are right.”
“There has to be a reason.”
“If we knew the reason then they may have cured diabetes by now.  We just have to live with it.”

That was our conversation the other day. It started out as a bit of a joke–my son producing his own insulin so he didn’t have to bother bolusing on his pump. His pancreas restarting? As if.  Sadly, it became a lot more serious.  He was outraged at his body. He could not believe that he could be made with faulty parts.

I agreed with him.  It was not fair. It did not make sense.  Why do some people get a lifetime out of a pancreas and others only get months? Shouldn’t there be a factory recall and they send us back the working pancreas? Yes, like GM recalling the steering column on my old car.  I got a letter.  I took it to the garage.  It was replaced.  Its good as new.
Can you imagine?…Oops, we messed up on that pancreas.  Can you come in and we will give you a new one? It will only take about an hour. Just drop in and we will have the new one up and working well before lunch.

Yes, that would be a great solution!