Exercise and Play…the diabetes way

The next two prompts for Diabetes Awareness Month Photo A Day are exercise and play.  When you live with diabetes, both require special preparations.

Last winter my son decided to begin working on his body.  He “found” exercise in a way that only a teen can.  He picked up the Body Beast exercise videos and began to tone his muscles.  This presented new challenges for us.  We had to learn how to tailor his insulin needs and extra carbohydrates depending on the intensity and length of his workouts.
body beast

Play also presents challenges…We must make sure that a glucometer and glucose are always with him no matter what he is doing.
skidoo day March 5 005skidoo day March 5 030

An Organiation that changed my support network FOREVER


As Diabetes Awareness Month rolls on, the prompt for yesterday was “organization”.  I can’t say that I have ever been “organized” when it comes to diabetes.  There are diabetes totes, diabetes organizers, and diabetes drawers but organized they are not! Lucky for me, the first thing I thought of when I read “organization” was the groups that have had an impact on my life.  The biggest of course being this organization….
Today’s prompt is “support”…once again the same image prevails. I do not ever dare to think of where I would be without the amazing support and friendships that I have made thanks to the original Children with Diabetes parents email list.  One email asking for help brought me friendships and support beyond my wildest dreams…
Alex and Liam at beachLiam and JesseKim and Sharon 
Scott and Stacey

Relationships…and more

I am still running a bit behind on my Diabetes Awareness Month Photos but here we go…
Truly the greatest gift that diabetes has brought us is the many amazing, enduring, and incredible relationships that it has brought into our lives.   I have been blessed to meet, talk to, and interact with people from all over the world who have become family to me in every sense of the word.
Family picture
Blue to me is still new. I know, the blue circle has been around for ages, why don’t I get with the program?? I have no clue.  When my son was first diagnosed, advocates displayed a grey ribbon with a drop of blood. I have that logo tattooed on my body and its the image that I have in my mind when it comes to awareness. I like the concept of a blue circle.  I like the unity that it represents.  I appreciate the hope that it brings. One day I hope that it will instantly evoke the same images and feelings that the pink and yellow ribbons currently do.  

Diabetes Awareness Month is here again

November is Diabetes Awareness month. Since November of 2000, I have been doing all I could to raise awareness during this time frame.  I would send out letters.  I would forward emails.  I would post statistics and explain how diabetes almost killed my son.

Yesterday marked the 90 year anniversary since Sir Frederick Banting had that “Eureka!” moment that led him to discover insulin.  For those of us who have seen what life can look like without insulin, we are forever indebted to this man who died before many of us were born.  The path he forged in finding an external source of insulin has allowed my son to thrive today.

Insulin is not a cure.  The challenges my son faces each day amaze and frustrate me. In an attempt to watch my waistline shrink instead of grow, I decided to log all of my meals on my Blackberry. Every morsel of food would be noted and the calories would be recorded.  I lasted for a day but I make my son do this regularly.  I help. I calculate.  I support where I can but its not an easy task.  No wonder he falls sometimes but sadly for him its not a matter of vanity, its a matter of life and death.  Too much or too little insulin is hazardous to his health.

Since that fateful day in March of 2000, my son has been stabbed by a needle to receive life sustaining insulin over 7200 times.  The number is actually smaller than it might be thanks to the insulin pump he has been using since he was five.  The “pump” has a small catheter (infusion set) that stays in his skin and is only changed every 3 days (or when it falls out while having fun).

While insulin keeps my son alive, balancing the intake of food, insulin, activity and health requires the constant lancing of his fingers to test his blood.  Not including routine blood work or testing his blood for ketones, he has tested his blood with his glucometer close to 40,000 times. 

I see his hands each day (which are a mess because he only uses one spot to test no matter what) and I look at the small red marks on his body that show where the last infusion set was placed for his insulin pump.  I can see the evidence of all of this jabbing.  As I wrote out the numbers above showing how often his body has been stabbed, my mind immediately thought of a water balloon with multiple holes and water pouring out in small streams everywhere. Thankfully he is not squirting blood on a steady basis (although he has been able to get blood for testing on occasion just by pressing on a point) but I would love to see a cure for this disease before he starts!