Last night I rolled over in bed, put my arm near my face and went…YUCK!
My son had dropped insulin on my arm! I was laying in bed when I realized that we had forgotten to reset his basals back to “school days” after 10 days of Easter vacation.
He made his way into my room with pump and site change gear in hand. I told him that I just needed his pump but he said that his alarm had gone off earlier so he might as well do both.
Holy cow! Was it a full moon yesterday? It must have been because his site change alarm went off AND he changed it the same day??? This was beyond belief! We did the site change, fixed the pump and he was on his way but unknown to me, he had left me that present…a large drop of insulin.
After my initial “YUCK!” I had to laugh to myself. Before diabetes moved into our lives, that smell was reserved for the opening of a BandAide brand bandaid. You knew that the cut was safe and sanitized. Now it evokes new images of syringes, cartridges and life saving liquid.
The smell is still rather disgusting when it arrives in the form of a puddle on your arm as you are trying to fall asleep but without it…well its definitely a blessing more than anything else.
I am not really into Valentines Day. When my boys were younger, we did the cards for their class. If I was feeling creative, we did “hugs and kisses” or Valentine pencils. For those times when I totally forgot that Valentines was about to happen, we did heart shaped sugar cookies that the boys took to share with their class.
My boys are now much older and school Valentines are no longer important. This weekend I received an email that has made this “Hallmark holiday” very special however. Diabetes Advocates and the Diabetes Online Community have come together to help the Life for a child program, sponsored by the International Diabetes Federation, which aims to take “contributions for donors (to) go to established diabetes centers enabling them to provide the ongoing clinical care and diabetes education these children need to stay alive.”
There have been times in the past 13 years when money was tight, insurance was not available and I had to limit the amount of testing my son did during the run of a day. That was scary enough but I never had to worry about him not having insulin to cover his food or stay healthy. For children in developing countries, these worries are very real but this Valentines Day you can help!
Spare a Rose, Save a Child, is a simple and amazing way to make a difference. This year, when you head out to buy your beloved a dozen roses buy eleven. No, you will not then be spending your night alone or sleeping on the couch because you will have taken the money that would have paid for that last rose and donated it to the Life for a Child program! You will have helped to save a child with one beautiful rose. Your partner will love your thoughtfulness much more than the extra rose. It really is a win-win opportunity!
So if you were planning on sending me a dozen roses on Thursday, I will fully understand when I receive 11–actually I will be pleased to note that a child will be able to inject life saving insulin for another week because I received one less rose. And, if you weren’t sending them to me, I am sure whomever was getting them will be just as happy to know that you spared a rose to save a child!
Happy Valentines Day!
The good news was of course the fact that we actually remembered to bring insulin on our Easter vacation. I packed not one, not two, but three vials. We were set. They were put in a lunch bag with an ice pack, close but not with the insulin. We had cartridges to put the insulin in and infusion sets for site changes. Life was good.
Our holidays went well. My boys enjoyed time with their grandparents as well as a great aunt and great uncle. The weather was pretty good so there was yard clean up, tree trimming and lawn tractor riding to fill the days as well as a bon fire for the evening.
Diabetes is less stressful at my mom’s because I know that when I am not around that she is asking my youngest son all of the right questions…
Did you bolus for that?
Have you tested lately?
Do you need the scale to get the carbs for that piece of cake?
Its a great feeling! Obviously my son feels pretty relaxed as well and quickly begins to forget that he still has some diabetes responsibilities. His site was changed before we left. A few days into the trip, I heard the beloved Cozmo let him know that it was time for him to change his site. I asked if he had done it. He was going to do it later on. After having the site in for over five days and us heading home, he finally said, “I guess I need to change my site.”
He once again claimed that he didn’t want to change his site earlier because “Timmy”, the tried and true site was perfect. It was working he felt and it would be wrong to try a new one. In an exasperated voice, I explained to him that the “wound” created by his site was healing and “Timmy” would not be doing the job very well much longer. I asked how his readings were. They were high. I rested my case. I did not freak out but I wanted to. My other son and Larry each had a say also. They told him that it sounded like it was time to change things. Eventually he agreed and said he would do it at our next stop for the night.
The site was changed but the cartridge was getting low. Once again, my young procrastinator felt that there was more than enough insulin to get him through the next day. He was going to his father’s house the next day so I gave up. He would fill the cartridge once he got there and was settled. He had three vials so I would not have to worry….until I dropped him off and was six hours away from him.
At that point I got a text message from my mother. “There were three vials of insulin left in the fridge”
Wonderful!!! was my reply.
I started to text my son but decided to call. I asked what he planned to do. He said he had some insulin in his Cozmo bag and it should do him. I was worried about how potent this vial might be. I did not know how long it had been out of the fridge but I would have to take a chance before telling him to ask his father to go to a pharmacy and buy a vial of insulin.
As I began to breathe again, I decided that I could only be so mad. He is 13 and admittedly very forgetful. He did do the right thing by putting the bag of insulin in the fridge. I was wrong in “assuming” that he had left it in his suitcase. I should know better than assuming anything wth children.
Today I texted him again asking how things were. All was fine. I needed to know how the insulin was working and figured a call was again the best method of communication. He had been really high, he had been in range and he had been low. The insulin appeared to be working and he was good to go until Sunday night when he comes home. I could relax until then and enjoy not having to test at night.
Merriam-Webster’s Dictionary defines “obsess” as to excessively preoccupy the mind. People have said that I obsess over my son’s diabetes. I have jokingly gone along with it on occasion. I have also been shocked at times to realize how much it is a part of my day and my life.
A couple of times recently, I have had the opportunity to go to lunch with my oldest son while my child with diabetes is involved in other things. As we sit at a table, I want to ask him to test. After his meal arrives, I automatically figure out the carbs and then have to stop myself from telling him how much to bolus. Maybe that is a little “obsessed” or perhaps its just habit.
For over ten years he has been with me most of the time. During most meals, I have had to remind him to wash his hands and to test his blood glucose level. Even when he has not been with me, I have had the carbohydrates calculated in almost all of his meals done for him ahead of time. I don’t think that wanting to ask someone else to test or calculating carbs is an obsession then. I think its just our way of life.
Its not just meals that make me think about diabetes related stuff either. I have been packing and unpacking as we adjust to a new home, new city and new way of life. Things have been more than just a little stressful as the school year end was happening at the same time. I have been organizing diabetes walks, packing clothes, throwing out items stored for years, filling prescriptions, changing doctors and preparing myself and my son for his two week visit with his father.
When all of the boxes were packed, the house was cleared, we had made our nine hour drive to our new home. I had wonderful help in terms of my family to get things boxed up and shipped on. There was nothing left behind that was not meant to be. Every piece of toilet paper was picked up. I was exhausted when we pulled away from our old house but I was confident that we had everything that we needed and that my son had all that he would need for his two weeks with is father.
Being exhausted and emotionally drained before a nine hour drive can only make your mind worse at the end of said drive. When we arrived here, my son and I grabbed the coolers and began to put things in the fridge and deep freeze. Where was the insulin? I had about six vials of insulin. Where was it? I took it out of the fridge. I put it on the counter. There was nothing left on the counter. I had to have it. What did I do with it? It was driving me crazy. How could I have misplaced something so incredibly important?
For those who don’t understand the reaction is obvious…why are you obsessing? The child is not even here and won’t be for two weeks! He has his insulin and you do not need any. You can buy more when you need it. What is your problem? Why can’t you let this go? Why is it so important to you now when you should be thinking about sleep?
Those questions did run through my head. I have to have our prescriptions moved over before he gets home. There is some insulin here even if I don’t get it done in the next two weeks exactly. Am I obsessed? The short answer to me at that time was YES! How can I not be? I have lived this life for the past ten and a half years. I have seen how vital insulin is. Yes, it may be about my child’s life but this is my life as well. Whether he is here or not, diabetes has become something that I live and breathe.
Is that a good thing or a bad thing? Some may say its a bad thing and that I need to loosen up. I think that it is okay. I have seen too many deaths from this disease. How can anyway say that being concerned, being on top of things and worrying about your child’s complete health is a bad thing? Oh and for the record…I still have about 50 boxes to go through (or so it feels like) and I still have no clue as to where the extra insulin is…or my cheese for that matter!