Last night I lay in bed wearing my DRI “Cure” t-shirt and wished for a cure more than I ever have.
We were headed home after two weeks on the road. Diabetes had kicked us pretty hard as I will explain in upcoming posts. We were on a boat and had a 14 hour crossing ahead of us. I brought up insulin, an infusion set, and syringes. I thought we were all set.
A site change was past due. When we settled into our cabin for the night, I had my son do a site change. A few hours later I awoke to him getting up to use the washroom. Either we had yet another bad site or he didn’t bolus enough for his earlier snack. I rolled over and went back to sleep confident that he was taking care of things.
An hour or so later, I could hear my son up yet again. I knew that things were not good. I got up to hear the splash of him vomiting into the toilet. CRAP! This was not good. I dug through our supplies and quickly realized that I had left my glasses down in our vehicle. Squinting, I looked for syringe and insulin. I also tried to find a new site…there wasn’t one. Crap was quickly upgraded to another four letter word!
I injected a correction and my son began to apologize for waking us up. I wanted to cry. I told him that it was not his fault. It was diabetes. It sucks but there was nothing we could do to prevent the site failure. He said that he had tried to creep around but had banged about a few times. Again, we said that there was no need to worry about it. We would worry instead about getting his readings down.
We all finally nodded off back to sleep. I could hear my son breathing across the room from me and knew that he was finally resting. He had said that he was coming back down before the injection so hopefully between the two he would be good to go. That’s when I laid down and thought it was ironic that the shirt I was wearing to bed that night said “CURE”.
I have never held out a lot of hope for a cure. My son has. After two weeks of diabetes doing all it could to curtail a lovely family vacation, I really want it gone. We have put in our time. I can only imagine what it keeps doing to my son’s body. Its time for a cure. We have waited long enough.
It all started last night a little after 9pm. Liam had been playing with his friends. He and a friend came in and grabbed a freezie. Liam came and brought me his saying he felt a little ill. That was when it began. He ran for the toilet and promptly vomited enough for 10 people! He had it everywhere. I was washing the floors, the walls and every surface in between.
When he was done, I told him to test and check for ketones. He had been in range but something had to have caused this. He was in range but where was the Precision meter? We tore apart all of our diabetes drawers. I dug in cupboards. We pulled apart junk baskets. Finally I found more than just empty meter cases and Liam was able to test for ketones. They were only trace. That was not our problem. I gave him gravol, his friend went home and Liam headed for the couch.
It didn’t take long before Liam was sound asleep on the couch. I quietly worked and hoped that he would be fine by the time I had to go and pick up his older brother from a teen dance. I heard a noise and looked to see if he was okay. He wasn’t. He was on his back, hands over his mouth and vomiting once again but this time he was keeping it all in his body. I was terrified. I had to force him on his side and hold him there. He kept wanting to roll back and keep in the vomit. It was up his nose and all over himself. I held on to him and let him throw up all over the floor. It was easy to clean but he kept telling me that he could not move. I was more and more scared. Finally the vomiting stopped. I had him sit up. He was very disoriented.
I ran a tub for him and wondered if I would have to bathe him. He was fine by the time it was done. He cleaned the vomit from his body and his hair while I cleaned another room. He decided that the was starving when he was done. I gave him a cracker and more gravol. He went back to sleep on the couch.
When it was time to leave I tried to get Liam to get dressed. He was still pretty out of it. We put a blanket, pillow, bucket, and rags in the back of the car and prepared for our car trip. As I started the car, I could hear the back door open and Liam begin to vomit again. We stayed there and waited for him to be done. I wanted to cry. Was this ever going to end? Liam wanted to stay at home but I could not leave him alone by himself. I was terrified that he would throw up on his back again. I was also going to be awhile and was not leaving him alone.
We made the trip with all of the car windows open. He slept like a log and all seemed okay. We got home and he wanted to eat. I had said if he could make the trip without being sick then I would let him have a cracker. He tested and he was 3 (54). I gave him sugar water instead. I needed something that he wouldn’t throw up and was pure sugar. It didn’t help. He fell asleep but stayed low. I decided to take a chance and try glucose tablets. He ate them but he didn’t go up. I set a temporary reduced basal on his pump. Still no upward movement. I finally suspended his pump. Still nothing. More glucose and finally a cracker. He had to go up eventually…and he did. When he reached 4 (72) I went and laid down for an hour. We were now at well after 3am. I set my alarm and checked him again. He had moved up to 5 (90). Back to bed I went with my alarm set for another 2 hours. Liam was sleeping on the couch. I had made it so he could not sleep on his back.
About an hour later I heard him again. He was in the bathroom throwing up. He finished and came into my room to sleep. I got another gravol for him. I was hoping this would eventually start to work! Liam instantly fell back to sleep. I dozed. With each turn he made I was awake and certain he was throwing up again. He did vomit again at 6am. He had a bucket beside him but little left to vomit. I was exhausted. He slept like a log. His bg level had not gone over 10(180) all night. I could not believe it.
By 11:30am he was awake and looking for food. I gave him some toast and told him to see how that worked. He no longer was that lovely shade of green so I hoped for the best. He said he felt perfect. By 1pm he was ready to go over to his father’s for the night. I called to check on him. He has been perfect all day. I am so glad for him but boy am I ever beat!