All Children with Diabetes are still not safe in school

school1It has been over 15 years since I was first asked to take part in discussions surrounding the issue of children with diabetes in schools.  I still speak publicly on the issue. I still assist parents but I honestly thought that after 15 years, more insulin pumps and other awareness activities that things would be vastly improved–that all children would be safe in school.

Things have changed.  Years ago, very few school had policies in place protecting our children with diabetes in schools.  Very few educators knew their roles and parents struggled as well.

Today there are provinces that  have stepped up to the plate offering guidelines and even legislation surrounding this issue.  Sadly there is still a long way to go.  There are still parents who do not feel safe sending their children to public schools.

I once looked to the US as a standard to achieve.  The rights of their children with diabetes are protected under the American Disabilities Act.  That had to count for something!  A lawyer friend of mine reminded me that this was a just a law.  Enforcing it could often be just as frustrating and overwhelming for families in the US as it was for families here in Canada.

The moral? Keep fighting. Keep educating, Continue helping and that is what I am doing.

Many years ago, just after a change in rulings on the Disability Tax Credit, I met a wonderful lady. She worked for what was then called the Canadian Diabetes Association.  She was there first formal advocacy employee.

Our sons were of similar age.  She listened to our struggles and empathized.  Over the years we have worked together on certain projects and simply managed to touch base now and then to see who the other’s family is faring.   The yesterday she sent me an email asking for help.

She too is still working on the national issue of safety for children with diabetes in schools.  There are still many families who are fearful of sending their child with diabetes to school.  There are other families that send their children to school but are constantly at odds with the system to achieve optimal care for their children.

This saddens me greatly.  If you are one of those families that are still having issues with your child with diabetes in school, please comment or message me (advocacy@diabetesadvocacy.com) with your email address. I will pass your information along to my friend and she will contact you. Hopefully together we will be able to highlight the problems and finally work towards a resolution to this issue for everyone.

 

 

3 thoughts on “All Children with Diabetes are still not safe in school”

  1. First I want to say thank you..
    I am a t1d mom to a little girl we have 3 years under our belt and a life time to go. The first 2 years gr 2 and gr 3 were horrible teachers would not come to training meetings or they would act like they understand then mess up the care plan by the next day .gr 3 test my daughter was told to leave her class as her pump was beeping to loud .the omnipod don’t beep that loud but it’s was ok for the child tossing chairs . My daughter was let out to leave school with out her t1d kit she was low and was found passed out in the park. They forget to bring fast acting out when. It’s a fire drill but teacher always made sure to have her purse. .when they would not let my daughter eats in the lunch room had to eat at the office with the kids who were bad that day. I would have to go to the school for snack time and lunch time everyday as ko one was there to support my daughter. Now on to the 3rd year I had to change her school cause the old one was going to be the deathbed one of us. I lost my hair due to the stress the school was causing me. Now she goes to a wonderful school yes still some hi hicup but so much better i still have to go in a lunch but teachers are on bord I still have to go on class trips one thing that bused me was when the teacher said they could not stop 30 kids to wait 15min for her bg to be treated and to come back up. I then asked what of another child was stung by bee or came in contact with nuts would you stop the class to treat and help this child the teacher reply back as yes we would how could we not. I started to cry and ask how come a child with an epipen life more better then hers they they will be saved by my daughter won’t unless I’m there. .my daughter wants hot lunch but they can’t give me carb count the menu they hand out is never the same what they are giving. Also when high blood glucose comes into play.that she not bad she just moody due to having such high blood glucose .I pray one day we get a policy in place and it happen before one of our t1d worrie pass away at school seems to be the only way to get a policy in place at tdsb like Sabrina’s law cowhan law rayans law all names of kids who died at school then they put policy into play

  2. I said it last night to Petronella Peach and I’ll say it again to you: the issue is caring for people with type 1 diabetes not care of children with type 1 diabetes in school. Of course, people with children in school are younger and have more energy to fight for the right to healthcare for their children in school. On the other hand, kids participate in other activities besides school and, yes, they should have a right to care while enjoying those activities, too. Also, people who are disabled cannot access optimal care often if they do not have a partner to provide that care for free. Partners can be harassed in treatment facilities such as hospitals and in long term care facilities–I’ve been the victim of that!!–when they are providing optimal care to their spouse or partner. This has to stop. I really wonder why the CDA hasn’t said anything about how hospitals treat their patients who are admitted for various procedures and tests and the caregivers (doctors, residents and nurses try to sabotage that care!). The focus should not be just on patients at school It’s a much broader topic.

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