Tag Archives: diabetes awareness

Diabetes is not a joke. Diabetes kills.

candleDiabetes is not a joke. Diabetes is not about weight or junk food.  This disease requires those living with it to walk a fine line…too much or too little insulin can have catastrophic ramifications. The fear is real and justified.  Diabetes kills. 

The article below was originally published on May 11, 2016.  It was exceptionally hard to write.  As a parent of a child with diabetes, we know that diabetes is deadly but we hope it will never kill one of our own.  When it does….well your world is shaken to the core and is never the same again. 

I think of this family daily.  I can only begin to imagine their pain and the pain of others who have also lost their loved ones to this disease.  We will never forget. We will continue to work towards a cure. 

In the diabetes online community, the appearance of a blue candle suggests that someone has lost their life to diabetes.  Its a time of sorrow and a time during which we hug our loved ones a little closer. It is also a  time to test a little more often before we allow the memory to fade and we move on.

Last week I received a message that made my heart stop.

I headed over to a friend’s Facebook page to verify what I had read.

blue-candleThere was  the blue candle.

My breathing stopped.

I read her post.

The tears began to flow.

Through the tears I sent a message to my friend.  She confirmed my worst fears with her words “I just want him back.”

“Oh, I wish I could bring him back for you!”

That’s what I replied through the tears.  I was numb.  The blue candle was no longer for a stranger who could have been my child.  This candle was for a child that I had watched grow through our online communications. This was happening to a friend who had been there for me through highs and lows of  16 years with diabetes.  I wished I could bring her son back to her.  The pain was too much for me and  I couldn’t begin to imagine how she was feeling. It hurt too much to try.

No mother should bury their child. We shouldn’t have to mourn for those who have yet to have fully enjoyed their lives. There is something fundamentally wrong with that. It makes our hearts ache.

When we hear of a child lost, we hurt but we push it away. It happens to other people.  It is horrible but it happens to other people.  But what about when it doesn’t? What about when it hits your family?

Last week it hit my family and the pain is still fresh.

15 +years ago, I became connected to the internet.  I reached out to find “parents of children with diabetes”.  Instead I found an information email list, or so I thought but what I really found was a family.

I found people, some that I would meet, some that I would talk to on the phone, and some that I would never know beyond the keystrokes of a keyboard. All of them would become family.  They would be by my side through the good times and the bad.  They would understand diabetes –its peaks and valleys but they would also understand me.  This incredible online community would be there for me at all hours from around the globe.  They were Friends for Life–they were family.

Over the years, some of those connections have been neglected.  Our children have grown and some of  our children have become parents themselves.  We have watched each other’s lives on Facebook and occasionally we wish each other well.

Other connections remain strong. We reach out regularly.  We have remained in contact and fondly look back on where we have been.

No matter whether we are close or drifted, when tragedy strikes we are all one big family again. One family united by pain–sobbing with each other.  A family holding each other in virtual hugs through real tears.

Tragedy isn’t supposed to hit us. Not a direct hit  like this one.  Diabetes in to supposed to take a child that we “knew” and watched grow but it has.  The pain is unbearable.

I know that the pain will fade for some of us.  It will dull a little for my friend but that missing piece will never be replaced.  I am lucky.  In 16 years, my son has stayed quite healthy.  In all of this time, I have only known of one person–whom I had met, spoken with, and been friends with, who had died because of diabetes but now there are two. Those are two too many.

I don’t want there to be any more.  There must be a cure.  People with diabetes deserve better access to treatments.  We need more awareness. We need more…

Those of us in the diabetes community  will continue to work harder. Some people will bike more while others will walk more. We will all advocate louder.

Our hope will remain.

We came together because of diabetes but we have stayed together because of  incredible friendships that knows no borders.  I pray that one day we will celebrate a life without diabetes.  Until then, hug your loved one a little closer today.  Send prayers and strength to the families who have lost someone during our fight. I am grateful to each of you who have become such an important part of my life.

What Parents of Children with Diabetes Wish You knew…

d parentsHave you read the blog post “What Everyone with Diabetes wishes you knew“? Go and read it if you haven’t. Bring tissues.  After I wiped away the tears, I began to think about “what parents of children with diabetes wish you knew.”  Some of us don’t have diabetes ourselves but we still have very strong feelings about the issue.  As parents of people with diabetes, we have things that we wish  our children knew.  There are also things that we wish that the general public knew.

Parents of children with diabetes wish that the our children with diabetes knew that….

We would take this disease from them in a heartbeat…a heartbeat.

With every tear that they shed,  we have privately cried  a hundred more… We didn’t want you to see how much it hurts us to hurt you.  We told you that we do this to keep you healthy and alive (and we do) but it kills us too.

No matter how old you are, we still want to “make it better”. Seriously.  Still.

We know that you can handle it.  We just wish that you didn’t have to…As parents of children with diabetes, when we were completely responsible for your care, we got tired and wanted a break. We understand that you, as the person with diabetes must feel the same way at times. We wish we could carry the burden for you.

Even when we don’t ask you how your readings are, we are still wondering if they are okay…We know that you are more than a number.  As parents of children with diabetes, we understand that blood glucose levels are only part of the story but we want you to be okay.  We want to know that the readings are okay as well.

We have watched you sleep and cried at all of the holes that we have put into your body just to keep you alive.

Every night that we sat awake waiting for your blood glucose to rise or fall, we did from love and a need to keep you safe.

When we nag at your for not testing, injecting or rotating sites it’s because we want you to have a long and healthy life.  It’s not that we love the sound of our own voices. It’s not that we think you don’t have a clue. As parents, we know  that life happens and people forget. We just want to help.

If you need us to, we will still help you with any care or night testing.  Ask.  We might be out of practice but we are quick studies. We will help you any way and any time that we can. It’s just what parents do.

Even if you aren’t my child and you live with diabetes, I wish I could take it from you.  Honestly,  I wish I could help you carry that burden for a week and let you breathe.  I have told you this before and I mean it. I don’t care how old you are.  You are someone’s child with diabetes.  You carry the same burden as my own child.  It still kills me.

I wish you didn’t have to carry so much “gear” with you when you go out.  I wish you knew the luxury of just grabbing your wallet and keys and heading out the door without concern for insulin, pump, glucometer and glucose tablets.

We wish for a cure too. Until it arrives, we will work with you to have the best care, the best knowledge and the best tools that we can afford.

As parents of people with diabetes, we wish that the general public really understood that…

Type 1  is not the same as type 2 diabetes.  Each disease has its own challenges and issues.

We did not cause our children to develop diabetes.  Seriously, we carry enough guilt about not protecting our children from an invisible disease.  Your added blame is not required.

It is okay for our children to have treats now and again, the same as your children do. No child–or adult should live on junk food but a cupcake now and again will just brighten someone’s day…or raise a falling blood glucose level.

Insulin is not a cure. It just keeps my son alive…and can kill him. It is a carefully managed tool that he use must use at all times.

An insulin pump is not a cure either.  A pump is an expensive tool that not everyone can afford.  Even for those lucky enough to be able to use one, there is still much work to be done to be safe and healthy.

Diabetes is expensive. Let me repeat this….diabetes is EXPENSIVE. There are many great advances in diabetes care but they are only available to those with excellent insurance or deep pockets.  The cost of diabetes supplies can range from the equivalent of a car payment or  mortgage payment each month. Again, that is just for a person with diabetes to stay alive.

I look tired because I don’t sleep at night.  After years of worrying about my son’s blood glucose levels and testing him numerous times per night–well I still wake up. I still worry about what his readings are. I still don’t sleep properly

Worrying isn’t about being an overprotective helicopter parent or because I have nothing better to do with my time.  I worry because diabetes is deadly.  Errors in insulin, errors in tools or simply changes in activity levels can have lethal consequences for people with diabetes.  This isn’t just talk. This is real.  I have lost friends to this disease.  Parents of children with diabetes  have seen their children die because of diabetes. Diabetes kills. It is a scary disease.

As a parent of a child with diabetes, I hope both my child and the general public know that I will continue to work hard every day to improve the lives of people with diabetes. I will offer a helping hand, a strong shoulder or the voice of experience where necessary. I will continue to dream of a day when we can say that we are parents of children cured of diabetes.

 

 

Diabetes Diagnosis day…It slipped my mind

Celebrating 17 years of health and wellness
Celebrating 17 years of health and wellness

It slipped my mind…sort of…well, more so than ever before. Today is the day that Diabetes turns 17 years old in our house.  Strangely, it hasn’t consumed all of my thoughts this month.  I haven’t planned this post for weeks in advance…in fact I actually had another post planned for this week when I realized the date!

That is unheard of for me.

Every March I think of two things…what will I get my oldest son for his birthday and how long diabetes has been a part of my youngest son’s life.

This March has been a bit different.  I was busy this March with other things.  For the first few days of the month, I got to spend time with my nephews after not seeing them for a  few years.  I was able to meet my youngest nephew for the very first time.  We enjoyed cuddles and goofing around.  It wasn’t until I was home that I thought about his little life and the life of his older cousin–my youngest son.

When my son was his age, he was being stabbed with a needle somewhere in his body 5+ times per day.  At the age of 3, his little fingers had tiny marks from testing his blood glucose levels 8 or more times per day.  My sweet little nephew had bruises on his knees from playing outside with his trucks.  When my son was that age, he had similar bruises but there were also bruises that would sometimes find his arms, legs or stomach after an injection.

I am so glad that none of my nephews have had to go through this.  I remain in awe of how well my son has managed to cope.  He won’t even notice this day.  Life with diabetes is all that he has ever known.  For him, it is simply be St. Patrick’s Day–an excuse to go out with his friends and have a beer.

I will pause as I always do.  Most likely I will message a dear friend whose son shares this “dia-versary”.  On this day, I will  be extra grateful for the many incredible and lasting friendships that diabetes has brought into my life.  I will also take a moment to cry for the friend who lost her child last year–we were brought together because of our sons’ common diagnosis of type 1 diabetes.

Today I am sure that I will slip back in time for a moment.  There will be a pause in my day when I vividly recall the lifeless child that I held in my arms 17 years ago.  I will remember the prayers that I said and the prayers that were offered as we rushed to the hospital.  At one point today I will see, in my mind’s eye, the doctor who sent my son to ICU and told me, “if he makes it through the next 24 hours, you will need to learn a lot about diabetes.” The phone calls, the terror, the uncertainty will all come flooding back just like it was yesterday.

Today I will quietly cry for the life that was lost but I then I will wipe away the tears.  As I tell others, today is about celebrating.  Today marks 17 years that my son has lived strongly with type 1 diabetes.  He has never let it stop him from doing anything–except for shovelling the driveway in the winter.  He seemed to often be conveniently low as a child during that particular chore.

My son now manages his diabetes his way. I don’t test him.  Rarely do I know what his blood sugar levels look like.  I can’t tell you his insulin to carbohydrate ratio or even his basal rates. Diabetes is his disease to handle now.

It hasn’t all been perfect. There have been stumbles along the way.  I still remain there to help when asked.  We discuss carb counts or extended boluses.  I still do site changes when required. Seventeen years later, we are both finding our way  but he is healthy and thriving.  I can ask for nothing more…except a cure of course.

 

What’s in a Word? Day 3 of Diabetes Blog Week

words-robin-sharma-quote

“The pen is mightier than the sword.”

“The tongue can pierce a heart. ”

“Words can inspire and words can destroy. Choose yours well.”

We have all heard the sayings.  We have also all felt the sting of words.  Words are very powerful.  They have a huge impact on our lives.

Today’s prompt for Day three of Diabetes Blog week, asks us to discuss the power of words.  How do we feel about the word “diabetic” for example?

I always refer to my son has  a person with diabetes.  “Diabetic” is not a word I have ever used around him or anyone that I know living with the disease.  Despite that fact, he will occasionally call himself a diabetic.  Does this mean that he seems himself as the disease? No but this condition has been with him for as long as he can remember.  It is as much a  part of him as his pump, meter and lancing device are.  They keep him alive.  He has a bum pancreas.  He understands that his daily routine is different from others. He doesn’t see it as a major obstacle.  Diabetes, diabetic, person with diabetes….they all just seem to be terms to him–terms that really don’t change much.

Some people are offended by the use of the word “diabetes”.  It is a word that is thrown around by the media and accompanied with a great deal of blame.  Diabetes happens to fat people who don’t care about their health. Diabetes is what happens when you feed your child a diet of chocolate bars from birth to age 12 non-stop.

Can you see the insanity? To me, the solution is not a name change.  The name has been changed–we once had juvenile and late-onset diabetes, and now we have Type 1 and Type 2 diabetes.  Another name change personally will change nothing.  The attitude and awareness must change.

No one should be blamed for their illness.  Education must continue.  We should unite in that effort not add to the shaming.  Cartoons that suggest that if Jimmy had twelve cupcakes and ate ten that he would have diabetes are just wrong.  I don’t care that it doesn’t say he will have Type 2 diabetes…it shouldn’t say diabetes period. It is not funny. It is simply cruel and that is wrong.

There are words used in diabetes care that  matter deeply to me.  The words “test your blood sugar” for example.  Those are words  that I have worked to be exceptionally careful with.

“Test” is a word with strong connotations in our society.  It suggests a black and white outcome–pass or fail, success or failure.  Blood glucose readings are often high or low and sometimes even “in range”.  To call the task to get those readings a “test” suggests that the number will show your worth–how good of a pancreas you were.

Yesterday we discussed the mental drain of diabetes.  For me, equating a reading with passing or failing adds to that burden.  It was very important to me, especially remembering that my son has been hearing readings since he was two years old, that numbers be just that…numbers.

I tried to stress that readings were tools.  They were a reference point to move forward from.  A reading that was too high was not a fail, it meant that he needed more insulin and next time we may need to factor in something else when dosing.  A reading that was too low as again something to learn from.  Of course a reading that was perfect was reason to dance, celebrate and pat ourselves on the back for being just plain awesome.

Words are powerful.  They can make you feel strong and invincible.  They can cut you to the core and make you feel worthless.  In life, I try to choose my words carefully. I make mistakes. We all do. I am not hypersensitive to the words that others use. I take my cues from my child and continue to make sure that he is not defined by the word “diabetes” but accepting of a life with this unwanted passenger.

Know the signs…Lives are at stake

The other morning as I scrolled through my social media newsfeed I read…

“My 14 year old brother died of kidney failure after living his life with diabetes.We are looking for help to pay for his headstone.”

“Teenaged boy dies from undiagnosed diabetes”

I saw blue candles.  I didn’t read any more.  My heart cracked a little more.

Sadly, these stories are not new.  I have been hearing and reading them for almost 16 years.

Did I hear them before March of 2000? No.

Why? Well, one reason is most likely the lack of social media in my life at that time.  I was not able to turn on my computer and read about it.  I didn’t have the technology.

The other reason is I didn’t pay attention. I didn’t know.

Before March 17, 2000 I knew next to nothing about diabetes.  I knew a lady who had it.  She took a needle or two.  She drank diet pop and people said that she didn’t take very good care of herself.

There was a young boy with diabetes that my mom knew when I was growing up.  He didn’t do anything different but some days he just sat on the couch rather than playing with the rest of us kids.

That was the extent of my diabetes knowledge.

I didn’t know that without insulin injections that woman would die.  I didn’t know that she had to balance her insulin, food and diet or she could pass out…or die. I didn’t know that the little boy was probably low and his body was recovering from a lack of sugar and too much insulin. I didn’t know that this was a very serious disease with very deadly repercussions if ignored.

Since 2000, I have changed…a lot.  The world has changed…a lot. Sadly, children and young adults are still dying because no one recognized the symptoms of diabetes.

The symptoms are still tricky.  I thought my toddler was teething or had the flu when in fact he was dying before my eye.  It doesn’t matter that the symptoms could be a mirade of other ailments.  We have to put the possibility of a diabetes diagnosis on the radar of doctors and the general public.

They have to run through the gamut of cold? Flu? Diabetes? A simple urine or blood test will rule out diabetes.  That is not being paranoid or over-protective.  That is the only way that we can begin to save more lives.

Know the signs
Know the signs

You always get the neatest things!

IMG_1981

I recently received my “Peace Love Insulin”  window clings.  I was so excited to receive them that I actually opened them in the car on my way home.  As I sat there, I wondered if I could put them on my car window right then.  The instructions said that I need a clean window, so I figured that I should wait until I was home and had a chance to make sure the surface was perfect.

When I got home, I immediately took a picture of my clings and shared them on Facebook and Instagram.  I wanted my friends who had created and mailed them to me to know that I had received them…Okay they were actually just too cute not to share!

After posting the image, another friend quickly commented, “you always get the neatest things!”  I realized that it is so true! I am blessed to have met so many incredible people on this journey with diabetes.  I have made connections all over the world. These fabulous people have shared things with us over the years and brightened my day with the smallest of gestures. That remains the most special part of this crazy life.

I have shared away of the diabetes shoelaces but if you would like to get “Peace Love Insulin” window clings, I can still set you up!!

Contact my incredibly talented friends over at the Diabetes Scholars Foundation. They have an Etsy page set up to take your order and send you out your very own clings.  You can stick them on your car, on your computer, wherever your heart desires!  Your money will go towards the incredible work done by the Diabetes Scholars and you will be the coolest person in town!

#PeaceLoveInsulin
#PeaceLoveInsulin

 

Lace up For Diabetes

#LaceUp4Diabetes  Have you heard of it?  I admit that I hadn’t.  What I had heard of was a friend on Facebook who was giving away these adorable shoe laces.

I commented on how cute they were.  He offered to send me a pair. Unfortunately because we were living in two separate countries, the hassle of mailing them was a bit much.  He did however pass along to his contact that I was interested in the laces.  This was the result…

#LaceUp4Diabetes
#LaceUp4Diabetes

Thirty pairs of shoes laces with the World Diabetes Circle on them!

It was a wonderful surprise.  I had only expected one pair.

These cute novelty items are the work of Novo Nordisk in an effort to offer support for those living with and at risk for, diabetes.  They write “Because if we all take these steps together, we can change diabetes.”  So very true!  Whether we work together towards a cure, to offer support, or to change legislation, one voice united is so much stronger.

Not so funny after all

The other day I shared a cute video parody on Facebook done by a young lady who has Type 1 diabetes.  She was singing about being low…and then overtreating and being high.  It was all done in fun. It was cute.  I shared it.

parody jealous

The thing was that while I watched it, I didn’t really think it was funny.  I actually wanted to cry.  My heart broke for her. I didn’t want her to have to feel low. I didn’t want her to have to feel frustrated that she over bolused for that last snack.  I didn’t want her to have to feel happy because she could show people that she could have a chocolate bar if she wanted.  I just wanted her to once again experience life without diabetes.

Perhaps it struck me more because they are all things that I don’t have to worry about.  I can nibble on the chocolate cake that is leftover from the weekend’s birthday celebrations without matching it with insulin. I can sneak a piece of chocolate from the cupboard just because I am having a craving. The only one who will give me a look will be my inner self  telling me that those spare 10 pounds will never go away at that rate!

My son manages his own diabetes care now.  He even makes his own changes.  In a recent conversation, I asked him how his readings were.  He said that he had been having an issue in the mornings but he tweaked his rates and all was fine now. He tweaked his rates on his own. No help from me. No help from an educator. He was steering this disease his way.  It was wonderful and sad.

Like this young woman in the video, he does it all.  There is no respite.  There is no end.  I get to sleep at night now because he isn’t under my roof to check.  Diabetes is always with my son, this young girl and the millions of others who have been diagnosed.   No matter how much I have worked to make life better for them, they still carry the burden. For whatever reason, that hit me hard the other day.  It still does.

I am ready for a cure.

 

 

A Rollercoaster Weekend of Emotions

Last week, Children with Diabetes hosted Friends for Life 2015 in Orlando Florida.  This is the most amazing diabetes conference for families on earth.

It is an experience that can evoke a sea of emotions.  Those who get to experience a Friends for Life Conference will feel the love and support immediately.  They watch name tags and put real bodies to Facebook profile pictures and Twitter handles.  They will take part in sessions that allow them to share their feelings, learn new techniques and hear about amazing new developments.

Sarah Loebner summed the conference up perfectly when she sang her song “Do you want to be my FFL?” (Check it out here… https://youtu.be/yh1m997pWhw )

Those of us unable to attend the conference ourselves, enjoyed viewing pictures and reading posts about what was going on in Florida.  You could feel the love spilling over the internet.

On Saturday July 11th, the feelings of happiness were pushed away as a sadness enveloped the diabetes community.  Many people had been following the story of Kycie, a young girl who was misdiagnosed with the flu when in fact she had Type 1 diabetes.  She slipped into a coma and experienced very serious brain damage because of this oversight.  Her story and her progress had been shared by many people in the diabetes online community but on the 11t11738031_10153498655789451_1000286532184841248_nh, her parents posted that she had died in her father’s arms.

The news saddened everyone.  The need for doctors and parents to be aware of the fact that type 1 diabetes can present itself at any age was posted on every other Facebook page.  People were reminded that a small drop of urine can save lives.

As this outpouring of grief and information was filling the internet, a new story was being shared.  A young boy named David was fighting the same battle as little Kycie!! Once again a Type 1 diabetes diagnosis had been missed and a child was fighting for his life.  Tragically, he too would pass away on Sunday July 12.

The grief is tangible.  The pain is real.

Friends for Life shows us how amazing life can be despite a diagnosis of diabetes.  They provide real examples of people who are living life fully for years with Type 1 diabetes.  They showcase the latest in technology and advances.  Despite all of this, if a child or adult is not diagnosed with type 1 diabetes in a timely fashion, the results can be deadly.  This weekend has proven this once again.

My own son was misdiagnosed when he was just 2 years old.  When the proper tests were run, he was given just 24 hours to turn around.  That was 15 years ago.  It terrifies me that with all of the advances we have seen in diabetes technologies that other families are still experiencing the pain that we did…and a lot worse.

RIP David and Kycie. 11750729_10207446600706801_4876256436333725936_n

Dear John and Jane Public

Dear John and Jane Public,

I understand that you probably know very little about diabetes.  Before March 17, 2000 I was just as ignorant.  Not knowing is okay. There are many things that I don’t know about but I am always willing to learn.  I wish that more of you were as well.

If you open your mind and learn, I am hoping that you will also begin to have more empathy and feel less inclined to point blame at the victims.  For some reason, a lot of the general public thinks that it is okay to blame people with diabetes for their condition.  it doesn’t matter if they are 2 or 92, many people feel that if they have diabetes they must have done something to make it happen.

In making that assumption you are hurting people like me, my child and many others who did nothing more than be born with genes that led their bodies to attack themselves.

You would think that after 15 years I would have a tough skin–I do.  I am used to well meaning people passing judgments on food that my child can or cannot eat.  I am used to people telling me that they understand my worries because their grandmother developed diabetes last year at  age 75.  I am used to people saying that my child must have it really bad because he uses an insulin pump.

I have learned to calmly tell those kind health care providers who ask if he will outgrow it that, no, he can’t grow himself a new lung and he won’t grow a functioning pancreas any time soon but thanks for asking!  I have learned to smile when I watch a TV show that suggests that they can track a missing person through the GPS on their insulin pump.  These are silly things that just get filed under “Things you deal with when you live with diabetes”.

John. Jane.  I do have to ask you one thing though.  You see, my skin has thickened. I know that I did not cause my son’s diabetes. He never had chocolate bars or was force fed jube jubes as a tot.  He had breast milk and few processed foods but that was not enough to protect him from developing diabetes.  His body still failed him.  It attacked himself leaving him terribly sick and almost killing him.

My genes may have played a role in this attack.  I have no family history of Type 1 diabetes and very little of Type 2 but I will accept that somewhere in my genetic makeup, there may have been some code that when passed onto his tiny body, created the havoc that led to his diagnosis.

I will accept that my ignorance of illnesses like diabetes and my faith in the medical community delayed my son getting treatment much later than he should have.  I believed the ER doctor who examined him and told me that he just had the flu.  That misdiagnosis almost cost my son his life but I will take the blame for listening to him even for a short while.

As you can see, I don’t need you to add to my guilt with nonsense. There are enough real contributors to keep me feeling horrible but they don’t.  Keeping my son alive and healthy for the past 15 years have been a greater priority.  It has been more important to learn about his disease, get him the best medical treatment, and teach him how to take care of himself than wallow in guilt and blame.

So John and Jane, what I am asking from you is for a bit more understanding.  You don’t have to know what my life has been like. You don’t have to know what my son deals with every minute of every day.  If you would like to learn more, please ask me and I will give you as much information as you want.  What you do can for me however, is to think before you speak.  You can think before you laugh at jokes about people getting diabetes.  You can think before you spread false information.

Please do not use scare tactics and tell your children that if they have one more candy out of the dish that they will get diabetes.  This is no more likely than your eight year old dropping dead of a heart attack because they had one more french fry.  You are right to teach your child the importance of healthy eating.  You are right to tell them how important eating balanced meals and staying active are but don’t make them think that the child in their classroom is responsible for her diabetes because she ate too much candy.  It isn’t fair to your child who may not want to be friends with someone who has such poor willpower,and it is not fair to that student who has enough going on in her body to deal with and could really use the support of friends.

Please Mr. and Mrs. Public, do not tell your friends about people getting diabetes because they are fat, lazy or because their parents didn’t care enough to stop them from eating junk. You may be sitting in a room with a parent whose child has diabetes.  That parent has struggled to make sure that their son or daughter has led a “normal” life while dealing with 3am low blood glucose levels that could kill their child.  That parent may have spent the past week worried about how their son would handle the pressures of graduation ceremonies and after parties while managing their diabetes care on their own.

John and Jane Public, I know that you cannot begin to understand what my life has been like for the past 15 years.  I know that you have no idea as to what my son deals with each day.  I don’t know what its like to deal with  a child with asthma or crohn’s disease but I would never blame the child or the parents for the disease.  I would listen and learn.  I would empathize and offer the little support that I could.

I don’t expect you to learn about diabetes.  I am not asking you to.  I will ignore most of your ignorant comments but if you let me, I will try to educate you a bit as well.  I know too much about diabetes.  I have spent the last 15 years immersed  in its world.  Don’t feel bad for me. I have met some amazing people and I have learned a lot.  My son doesn’t need your pity either. He is quite happy just leading his life but when you see his pump or watch him lance his finger remember…

Yes it hurts but it keeps him alive.

Yes, you could do it if you had to and hopefully you will never have to.

Yes, you should stay away from that junk food and exercise more.  It may or may not stop you from developing diabetes but either way, you will feel better.

Yes, he does have the bad kind of diabetes because there is no good kind.

Yes, its okay to be thankful that you don’t have to experience any of this….I really wish my family didn’t have to either but we do so please, think before you speak, and maybe, just maybe, take the time to learn about this disease that is impacting more and more families every day.

Sincerely;

A  tired mother of a young man with Type 1 diabetes.

Loving created by my dear friend Cheryl D

Loving created by my dear friend Cheryl D