Tag Archives: diabetes help

Saddle Sores

 

My sons came to visit for a weekend over the Christmas holidays.  The visit was short but very much appreciated. It took a minute or two to get back into the hang of having diabetes in our house.  Sadly however, we quickly fell into the routine of…

“Did you test before eating that?”

“How much did you bolus?”

“How many carbs do you think are in those candies?”

My children are now young adults and while I always said that I would test my youngest son any time he was in my house, I also try to respect his privacy.  This means that when he is here, I ask him ahead of time if he wants me to test him at night.  The answer is always the same…YES!

This time around I thought of my mom as I struggled to test at night.  My mom had taken my children at certain times when they were growing up.  As long as I gave her carb counts and a testing schedule, she was good to go!  After the fact she would regale me with tales of sweat trying to get blood out of my son’s fingers at 3am.

Now it was my turn.  The meter had changed.  We were finally getting around to trying out his new Dario.  The pump was one that I had never used except during vacations.  I was a newbie…and it showed!

I struggled to get blood.  The Dario has no back light so it was a challenge to see if the blood was actually hitting the right part of the test strip.  I had the strip in backwards. I still didn’t have enough blood.  And so the fight continued.  My son woke up more than once during these “helpful” nighttime sessions.

I had to figure out how to correct with the “new” pump.  I can correct on a Cozmo in my sleep.  This pump is not a Cozmo.  After I was shown by a sleepy young man how to bolus a correction it made sense but as I was scrolling through the pump screens at 4am, there were some not nice words being said!

I don’t know if I was a lot of help to my son.  I don’t know if he got a break but for three days there was someone else to bounce numbers off of.  For three days there was someone else to be up during the night.  I know he appreciated it but being back in the diabetes saddle definitely gets a bit more challenging with time!

Make this month’s Hallmark Holiday Truly mean something!

Maybe it’s because I am getting older.

Maybe it’s because every month there seems to be some occasion that is asking for access to my wallet.

I am sure it is a combination of the two.  We literally have only just finished putting away everything from Christmas so another occasion is just too much for me to handle so soon.  I cannot get excited about more chocolates (I still have to lose the weight I gained from all of last year’s chocolate) or an overpriced card that says the things we should be sharing on a regular basis.  I can get excited about saving the life of a person with diabetes however.

For the third year in a row, the Diabetes Online Community has come together to help the IDF’s Life for a Child Program.  The idea is that a dozen roses cost $60.  $60 would cover one year’s worth of insulin under the IDF’s program.  Since no one wants to see anyone end up in the dog house for not giving your loved one the required flowers for Valentine’s day, the idea of “spare spare a rosea rose” was born.

Give your loved one 11 roses.  Spend $55 and then give that extra $5 to the IDF.  That $5 donation will last a lot longer than the rose.  With a lot of TLC, I am guessing you will only get a week out of the roses and a day or two of goodwill.  If you spare a rose you will get the week of seeing those 11 roses blossom, but a child will get one month’s worth of insulin and your sweetheart will know how much you care about others and which might be worth an extra week of goodwill from him/her!

This year its easier than ever to get involved.  I just made my donation as I was finding all of the links for this post! You click on the donation page, choose the currency you would like your donation in (you have a choice!!), decide if you want to make a one time or monthly donation, decide how many roses you are willing to forfeit for a great cause (one? two? the entire dozen?), and finally choose how you want to pay.  You can pay from your PayPal account, a credit card, or a bank account.  It really is that simple to save a life! You can even share this idea with your office and create an office campaign.

If you are like me and not a big fan of February’s Hallmark Holiday, I encourage you to turn it into something meaningful and become a part of the Spare a Rose, Save a Child campaign.  Tell your loved one how important they are to you and then show them how much you care about others by donating a rose (or twelve) to save a life!

To learn more about the Spare a Rose, Save a Child campaign, please check out these frequently asked questions.

Depression and Diabetes

I don’t want to get out of bed. What difference does it make any way? I am tired. I don’t matter. I can’t take it any more. I can’t lift this dark cloud that hangs over me. I am poor company. My family is much better off without me. I don’t make a difference in the world. I am just taking up space. No one would miss me. What is the point?

Does any of that sound familiar? Many of us have had some or all of these thoughts to varying degrees. Yesterday’s passing of Robin Williams showed us that money, fame, and talent do not protect you from the devastating reach of depression. Sadly, if you live with diabetes, you are also twice as likely as the rest of the general population to be effected by depression.

The Diagnostic and Statistical Manual of Mental Disorders characterizes clinical depression “as having five of more of the following symptoms during a 2 week period and represents a change from previous functioning with at least one of the symptoms being a depressed mood or loss of interest or pleasure.  The other symptoms included a diminished interest or pleasure in almost all activities most of the day, may appear tearful,  significant weight loss or gain, insomnia or hypersomnia nearly every day, psycho-motor agitation or retardation never every day, fatigue or loss of energy nearly every day, feeling worthless or excessive or inappropriate guilt, diminished ability to think or concentrate, or indecisiveness, recurrent thoughts of death, recurrent suicidal ideation without a specific plan or suicide attempt.  These symptoms are not brought on by medication or other physical condition and impair ones social, occupational or other important areas of functioning. ”

Everyone has those days when the world seems dark and bleak.  People living with diabetes however are cautioned by experts to watch a bit closer for signs of clinical depression in their own lives.  Gary Scheiner mentions this issue in his book “Until There is a Cure“.  He and others note that the pressure that comes with diabetes care, the need to “get it right”, and be the perfect diabetic can lead to failure and a deep sadness that can spiral into clinical depression.

We are also reminded that the people with diabetes are not the only potential victims.  Parents of children with diabetes may also find themselves in a pit from which they cannot see the light. We often experience our own guilt for first somehow allowing our child to develop this disease. There is the guilt over nagging them to test or inject.  The feelings that we are robbing our children of a “normal” childhood by forcing them to take responsibility for their diabetes care too soon can be overwhelming. The list of reasons for sadness go on in both those living with diabetes and those who care for them. The challenge is to recognize the symptoms and get help.

The Mayo Clinic feels so strongly in this that their website specifically cautions people living with diabetes to be very alert to signs of depression.  If you feel that you are suffering from clinical depression, please see your doctor.  Just as you take insulin to deal with the imbalance in your body thanks to a non-functioning pancreas, it is important to take medication that can help to work with brain chemistry that has somehow found itself out of balance as well.

Counseling, therapy, and even life coaching can help to deal with the daily stressors of diabetes care.  They can help you to deal with triggers and create coping strategies but they will not fix the chemistry if you suffer from clinical depression. If you are struggling with a diabetes diagnosis, please look for support from others. If you feel that the depression and sadness has become prolonged or overwhelming, please see your doctor. Together you can  create a plan to help you find your way forward again.

robin williams
Thank you for the years of enjoyment and sharing your talent. May you find the peace in death that you were unable to find in life. RIP

 

 

Balancing Diabetes…A Book Review

A number of months ago, I was honored when the folks at Spry Publishing contacted me and asked if I would be interested in reviewing an advanced copy of Kerri Sparling’s new book, Balancing Diabetes. I have enjoyed Kerri’s blog but I honestly wondered about a book that suggested that you could find some balance in a life with diabetes.  What pat formula would she suggest?

Any fears or concerns that I had were quickly pushed aside as I began to devour this book. As with any book that I read and am going to review, I bookmark passages and pages with little notes of why this sentence or paragraph moved me.  In looking back at Kerri’s book, I literally have over 50 different sections marked off for mention! This has to be a great book…and it is.

As  a mother of a child with diabetes, I was also worried that I would be reading this book from the outside. Kerri is a person with diabetes and this book would be all about her right? Wrong. By page 9 Kerri’s mother shares her feelings and I could hear myself in her words “…I didn’t know what we were getting into. I just thought, Okay let’s go deal with this, whatever this is.”  Kerri’s mom goes on to say that she handled what she was given but did not want any more.  She would learn in stages because the get everything at once would be overwhelming. I felt the same way when my son was diagnosed.  I was on overload and autopilot for months. Slowly I would add knowledge and information when I could handle it…this was how we, as parents, found balance with diabetes.

This book brought out many emotions.  Reading about the burden of being shown and repeatedly told about your own mortality at such a young age made me wonder how my son feels? Is he still an immortal teen or does he have Kerri’s “heightened awareness of how vulnerable” her health was? Either way, does he also know, that I share Kerri’s mother’s feelings when Kerri told her that she didn’t care if she was high and her mother responded “For now, I’ll care enough for both of us.”  Yes, I cried reading this.

But like the title, this book has balance.  While there are many very serious conversations, humor creates a fabulous balance and brings a different kind of tears…the ones you get from laughing! Kerri’s wonderful sense of humor shines through in this book.  The topic of sex is never an easy one but Kerri takes you past the embarrassment and makes you laugh with her candor.  She shares the story of her first serious low  with her husband. It took place after they had made love and her husband lays claim  to responsibility for it happening!

Besides the amazing humor and the walk through Kerri’s life, she brings in the experiences of many other people who live with diabetes to provide some fabulous tips for living a full life with diabetes.  They  takes us through diagnosis, the trials of teens, life as a young adult, dating, marriage and even pregnancy.  Kerri talks about the sense of helplessness that diabetes can create at times–for the person with diabetes, their partner, and even for the parents.  Sean Oser provides insight on dealing with blood sugar readings, “There are no good or bad blood sugars; every result is just a number, and it tells us what to do next.” This is a motto that I have tried to instill in my own son for years.

Balancing Diabetes looks at pump starts, travel and advocacy.  Each topic is looked at both from Kerri’s perspective as well as that of  many other people in the diabetes community.

The most poignant section in the book for me, was when I saw a person state that they do NOT believe that you can find a balance when living with diabetes.  What? But the title of the book says that you will.  How could this happen? How could someone state that balance cannot be achieved? Well, that is the beauty of this book! It does not show one size fits all, pat answers. This book shows you real life. It shows real pain and real accomplishments. It emphasizes that diabetes really is a “your diabetes may vary” kind of disease.  How wonderful!

This book is a fabulous balance of perspectives and stories.  It does not tell you one way to “do it right and achieve balance”, it shows you a variety of approaches to a variety of topics and what works for different people.  The best thing is that it also tells you that you never fail. If you have been really bad about taking responsibility for your diabetes care, cut yourself some slack and make a change now.  It’s not too late. If you have been diagnosed with diabetes related complications, don’t beat yourself up. It’s not your fault.  Brush yourself off and move forward. You have got this handled. You are amazing!

Balancing Diabetes is a wonderfully written book filled with a balance of real life events that show that we are not alone–whether we live with diabetes, are parents of a child with diabetes, or just love a person with diabetes. Now hurry up and order your copy because I noticed that Amazon Canada was almost out already!

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