Its a BAD day for Da ‘Beetus

“Mom you should have warned me!”
What was he talking about?
“Mom you should have warned me that we have a clinic appointment tomorrow! I would have done a lot better. Today was a really bad day for da ‘beetus!”
He did know that he had a clinic appointment today. He simply chose to forget…like he forgot to test a number of key times throughout the day and like he forgot to bolus for his supper! It was a very bad day for “da beetus” alright!
I have downloaded his meter. I have written out his basal patterns and the result is that I don’t want to know what his A1c is because I know it will be bad.  I also wonder what I have been thinking in looking at his basal patterns on the weekend versus the weekdays.  The weekdays are a mess. My first guilty thought was “its time to do some serious basal testing and fix this!”  My second thought was “why?”  This is my son’s last full week of school.  Next week is an exam every morning and then slacking…I mean studying every afternoon. After that it is basically summer vacation, a time when we switch over to a permanent “weekend” basal pattern.
I hate the thought of our team looking at his readings. They are a mess but each one tells a story.  They say… “He didn’t weigh his cereal.”  “He eats constantly and there is no break to test basal patterns.”  “He is working out and we are working at learning how exercise impacts his insulin needs.”  “Mom has given up asking for data and works with the little information that she gets.”
My son said that I should just let our team do their job. That would be great but they have no data either! How do you say adjust that basal or bolus ratio based on a reading that was taken 20 minutes AFTER he ate? Hopefully they will simply be on board with helping to get us a CGM in the fall or whenever the DexCom comes to market.  Perhaps they they will remind him to test if he wants his licence.
I hate clinic appointments. Why do they always feel like you are going into the principal’s even though you know that you are doing your very best? Perhaps I will just go in, keep quiet and let my son handle all of this one…that would make things interesting! Wish us luck!
kid diabetes

A1c Zen

I realized last night that we have a diabetes clinic appointment next week. We will get our dreaded A1c at that point. I have just finished reading the section in Leighann Calentine’s book Kids First Diabetes Second where she talks about people thinking of the A1c as a report card on what sort of a pancreas you have been during the past 3 months and realized that this A1c was different. 

I do normally look at it as a measure of how well I have taken care of my son…until now.  For some reason, in looking towards the impending results of this blood test, I am seeing things very differently.

My son is now a teen.  He will begin grade 10 in the fall. We have been working towards his own diabetes independence for years thanks to the amazing doctor who looked after him for the first 10 years after diagnosis. I still bolus when he hands me his pump. I still remind him to test and I hover over him threatening to insert a site in very uncomfortable spots when I know that he has gone days past a scheduled site change, but I am also allowing him to make a few of his own mistakes.

I thought about his basal patterns and realized that I am not making as many changes lately as I normally would have been.  I am also not doing every part of his care.  We have seen highs and have known that it was a bad site–No sense changing anything for that one.  We have seen lows and known that it was that day of biking we went to a park and brought this bike lock so we could pull over and walk around. Since he is going to be more active for the summer, that low warranted a change.

There have been more issues that have not warranted a change though.  That is my point.  We are looking at highs and the occasional low and going, “Oh yeah, that was a mistake here.”  or “Oh yeah, I guess there was more fat in that meal than expected.” We (read that he) are learning.

Thanks Reyna at Beta Buddies for the cool report card graphic!

I have no idea what this A1c will look like. I expect it to be “okay”.  It will not be as low as Mom likes. It will be low enough for the diabetes team to go “oh wow! You are doing excellent.” but personally they have pretty low standards. It will not be a double digit. It will most likely not even be overly high but it will be higher than I like (I am a seven person. I love to be under that 7% mentioned in the DCCT). 

Call me in three months and this Zen moment will most likely be gone. I will be freaking out at the results. I will be hovering over my son more and telling him we have to get together a lot more on this but for today…I am good. Its a number. It just shows that we are learning and working towards my son taking over his disease with a large arsenal of skills one day in the near future.