Today I am definitely feeling like the bug. Its after midnight and of course I was dying to get to sleep. I set my alarm for early tomorrow morning…Liam’s last day of school. I found a meter and a strip. I grabbed a lancet, waded through all of the junk that Liam had left on the stairs rather than putting away and was off to test. One last check for a few hours. One check and I could sleep! We had been out for pizza to celebrate good grades so Liam would still be high. He was 16 (288) earlier so you know I was going to be able to rest.
Wrong! I took the meter. I filled his finger with blood. The strip refused to suck. What the???? Okay, I cleaned the finger. I got more blood. I tried again. It just barely accepted the blood. I waited for the reading…E5. It was an error reading!! Not enough blood. Oh the lovely four letter words that were on the tip of my tongue as I headed back downstairs. Let me try this again.
New meter. This one had to be better. New strip. Same lancing device. Back up the stairs, this time grumbling and picking up items as I went. I threw the items off to the side for Liam to deal with tomorrow and headed to his bed. Once again, I lance his finger. Once again, I get a large amount of blood. The strip sucks this time. I walk towards the stairs not even thinking about having to correct. Good thing…he was 3.2 (57). More choice words as I shuffle off to get some juice. I fill a glass, find a straw and do those stairs for a third time in less than five minutes. Liam is not keen on drinking. I finally get him to sip. He drinks it all except the last few drops. Those are sucked up into the straw and then fly all over his pillow. He is using my cream pillow cases and I have managed to get strawberry juice on them! I can’t even blame him but I am choked. I clean them as best as I can and now I wait. Why are 15 minutes a lifetime when you are dead tired and simply want this day to end?
Yeah! 5.5 (99) and I am off to bed for two hours. Oh the fun! Oh the joys! Oh where is my DexCom Seven Plus????
There has always been a joke about creating a diabetes boot camp…well actually it is half serious. A camp where kids/adults would be sent and forced to learn about diabetes. They would have to realize how important it was to test and inject. We would show them reality and help them to face it.
Today I began thinking a little more. What about something much more serious and encompassing? What about family camps? I know that family camps exist but what about family camps targeted to families who have trouble dealing with diabetes? Who have children who are in DKA a set number of time? What about a camp for families who just are not getting it?
I know that no such thing exists in my province. I also realize that this would be a very costly venture. There is the camp itself, food, and the cost of experts.
You would need doctors willing to talk on basic care as well as the realities of complications. Someone to discuss therapy options and the importance of testing. You would need a nurse and dietician to discuss diet, exercise, etc. You would also need people to lead discussion groups–ones for parents, for children of different age groups, and for families as a whole.
You would need to organize fun as well. Things that would bring families together and create bonds with new friends. I know that groups have done this in the past. I also realize that money is tight for all organizations currently. I still wonder if this could work. How it would work? Who would you approach?
Any ideas? Please let me know. I think this might be something I want to seriously look into. A camp for…2010?? Hey let’s start dreaming!!
This weekend my son had a friend spend the night. They had such a good time that when the boys went to their father’s the friend joined them. When his mother called for him to come home the young man asked if he could spend the night there. His mother agreed. It was raining and the boys had come in for the night anyway.
Before the young man’s mother hung up she asked if Liam had tested. She heard “I was just about to do that.” She told the boys that she would wait to hear the result. Liam tested and told her he was 10(180). She said, alright then and let them carry on.
Today she told me about this and said “Gee,nothing like a second mother,huh?” I laughed and told her to keep it up. He can never have enough people that care!! Besides, until I get that CGMS I will take all of extra help I can get…and even after!!
Welcome to our new Blog home!!! It was suggested that we make our blog page much more interactive and after some searching, well this seemed the logical answer. We hope this works for everyone and look for many more changes to the Diabetes Advocacy that we hope will help you to feel more at home and provide you with continued information and entertainment as you look into our lives!
Complications. They are one of our many nightmares when living with diabetes. Personally the first one is dead in bed. The idea of a serious low that I may sleep with terrifies me and keeps me searching for just that right CGMS tool…and I may well have found it but that is a post for another day.
The second big fear is the complications caused by highs. We have all heard the big ones. If they run high for too long there can be complications of visions as the small blood vessels are damaged. We see the optometrist every year and have pictures of those vessels taken “just in case”. We know that neuropathy can occur in the feet and we keep them clean, dry and in wonderful condition. We know that males have to be concerned with erectile dysfunction. Yesterday I heard of a completely new one to me…the issue of incontinence and loss of bowel control. At first it was mentioned in regards to elderly patients and their complications from Type2 but quickly the record was set straight. Young girls in there 20s who had taken poor care of their selves during their teen years were now wearing Depends and battling severe depression as they could no longer control their bowels.
I cannot begin to imagine how degrading that would feel at any age but in your twenties?? More to be scared about. Another nightmare. Another worry. Another reason to get that CGMS yesterday rather than today. Another reason for tight control.