Six Tricks to Enjoy Halloween with diabetes.

trick or treating with diabetes
from Charles Schultz

It is that time of year again, time to get ready for the Great Pumpkin and all of the fun…and anxiety that Halloween can bring many parents. For those families dealing with diabetes for the first time, the stress of trick or treating with diabetes can be greater than dealing with the challenges of Christmas.

Children are invited to Halloween parties.  There are Halloween events at school and there is the inevitable night of trick or treating.  What do you do with all of that sugar?? Well here are a few things that have helped some parents get through.

Eat while they walk

Its okay to let your child eat candy while he/she is out trick or treating. In fact, go ahead and encourage it (as long as usual Halloween safety rules are applied of course–Mom/Dad checks candy or it is from the home of a good family friend).  All of the walking, running and general excitement will most likely lead to some serious low blood sugars.  You can help to avoid this by letting your child eat the bars, rockets (Smarties for my US friends) and other treats. Your child will feel “normal” and it will be a fun way to keep blood glucose levels in range.

Halloween treats are great from treating lows when you have diabetes

Halloween is the perfect time to stock up on low supplies. It offers fabulous 15-gram packs of sugar just perfect to carry in your bag and treat lows. In fact, even if your child doesn’t take part in Halloween events, you may want to head to the grocery store during this time to grab a few bags of low treats and save a few dollars! They tend to be a lot cheaper than buying glucose tablets from the grocery store.

halloween treats at mealsMake Halloween treats part of a meal

If you like to stick to a set meal plan, you can still add in some of your child’s Halloween treats. A bag of chips is equivalent to a bread exchange. A snack-sized chocolate bar is the equivalent of a fruit exchange.  For a treat, allow your child to have one of their Halloween items as part of a meal or snack.

Buy the candy back

Some families offer their children cash for their candy.  The children can then take the money that they earned collecting candy to purchase a book, game or favourite toy.  Mom and Dad can take the candy to work or save it to enjoy during some downtime when the kids are in bed!

The Great Pumpkin

Have the Great Pumpkin or Halloween witch come to visit.  Much like buying the candy, parents will exchange the candy while the child sleeps.  In place of their loot, the child will receive a movie pass, book or other treats that don’t involve food.

Donate it

Yet another way for our children to learn care and compassion is to take their candy to a local hospital or hostel. Have them share their candy with children who are unable to go out for Halloween.

Halloween is often a fun time for children. Remember that children with diabetes are children first.  Use some of the tips above to ensure that your child has a fun and memorable Halloween or let us know what works for you in the comments!

Summer Vacation and Shared Parenting

shared parentingIn June of 2011, I was stressing out. My son was finishing up the school year and preparing to head away for a few weeks with his father.  His care was notoriously lacking when he went away.  I was stressed to the max.His insulin needs were less and less. Despite my best efforts at reducing carb to insulin ratios and turning down basal rates, he was still going low.  I wasn’t sure how I would handle it.

You can read all about it here

But guess what? We survived. He did and I did.  He was 13.  The burden of care fell 80% to himself.  His father and brother helped out with site changes.  His father did some of the night-testing.  I worried and learned to live without diabetes for a few weeks but we survived!

Here are a few things that helped deal with shared parenting a child with diabetes.

Two types of calls

We had two types of conversations. “How are you? Are you having fun?”, was the first call. This was the start of all conversations.  Diabetes could not take a front seat unless there was an emergency.  He had to be a child first.

At a set time, however, was the second type of call.  This was a diabetes conversation.  This involved having a meter out,  sharing readings, what he was doing and why a high or low could have occurred. These were strategy sessions…and much shorter than a regular call.  My son didn’t want to be bothered by mom’s nagging or diabetes but he also knew that it had to be done. My concession was to make it short.  I gathered data quickly and offer suggestions.

Seven years later, parents can now get real-time data through sharing apps on the Dexcom and there are even a few hacked Libre sharing programs that can be used.  This can definitely help to ease a parent’s mind but remember not to become obsessed by the numbers. This leads us to another thing that can be hard to remember.

Different doesn’t mean bad

I think that this can be the greatest challenge when joint parenting a child with diabetes.  Whether you are divorced, separated or living in the same household, often there can be different opinions on diabetes care.  A reading that you feel is high and needs immediate attention may a number that someone else is okay with because they know that there is a very active afternoon planned.

Try not to freak out every time the other person does it differently.  Different means just that…not the same way you would handle it.  The biggest rule is “does different endanger the life of your child?” If not then bite your tongue, let your child enjoy their time with the other parent and say a quiet prayer of gratitude when your child comes home healthy and happy.

Adjust basals accordingly

When my son would spend time with his father, he would spend most of his time on the go.  He would be catching up with old friends. He would be on quad or spending the day at the beach. There would be late nights and later mornings.

Before he would go away, I would make small tweaks to his basal rate to allow for an increase in daily activity and a decrease in morning activity. I allowed him to run a little higher than I would if he was with me because I also knew that he wouldn’t test or correct as often as he would if Mom was there to ask “did you check lately?”

Take some time for you

As much as you will stress and worry, this is your time off.  Diabetes has left the building.  Allow yourself to rest and regroup.  Spend some time with yourself.  Enjoy restful nights.  Read a book.  Go out with friends.  Do anything that makes you truly happy because no matter how you feel about the child’s other parent…that parent loves your child as well.  They will do their best to take care of your child and leave he/she with great summer memories so make some awesome memories of your own.

When you are reunited with your child, you will both be ready and recharged for all that diabetes throws at you!

 

An Overview of BC’s New Insulin Pump Program

BC insulin pump program expandsThe internet has been abuzz. The provincial government of BC lived up to an election promise by removing the cap on its insulin pump program. There was celebrating in the streets…until the fine print of the new program was read.

You see, this program will be unlike any other program in the country.  It will be a two-tiered program that seems to favour one insulin pump company over the others.

The issue is complex and very emotionally charged. Let’s take a closer look and you can decide for yourself if this is a step in the right direction or a step on a new and slippery path.

No more age cap

This is big news.  Adults no longer have to pay for their insulin pump out of pocket if they don’t have private insurance.  One pumper I spoke with as spent almost $20,000 to purchase insulin pumps over the past 15 years.  That is a lot for an individual to come up with every 5 years.  It is not surprising that she sees this as a welcome relief!

A two-tiered program

This is the news that has some people scratching their heads and wondering if this is such a good program after all.

All residents with diabetes will be eligible for an Omnipod insulin pump and supplies under tier one.  There will be no deductible for this system.

If you do not want this insulin pump system and feel that a Medtronic insulin pump would be better suited for your needs, you will have to convince your doctor of this as well.  Under tier two, a portion of your insulin pump and supplies will be covered if your physician prescribes a tubed (Medtronic) insulin pump.  If you simply want to own a tubed pump but your doctor does not deem it medically necessary, you will have to pay all costs out of pocket.

You can read all of the details on the BC government website here.

A pump is better than no pump

There is a school of thought that any pump is better than no pump and I can agree with that.  If you want to use an insulin pump, then this is a fabulous option if you have no coverage. You can also work with your doctor to attempt to get some relief on a tubed insulin pump if that is your preference.

It’s a win for the little guy

Some people are claiming that this is a huge coup for the little guy.  The small insulin pump company Insulet is the preferred insulin pump for the province.  That is rather significant I will agree.

It’s a start

One thing that I always tell people who ask me for tips on advocacy is to think of their “ask” as a cookie.  Every piece of the cookie that you get is a step forward.  Often you don’t get the entire “ask” (cookie) at one go so you keep asking.  You keep enjoying each bite, knowing that you are working towards having that entire cookie.

Conclusion

For residents of BC, this is another step towards the ultimate cookie. There were pumps for kids. There were pumps for adults up to age 25 and now there are Omnipods for anyone who wants them and assistance on tier two, tubed pumps.  It another step towards the goal of coverage for everyone regardless of age who wishes to use a sensor-augmented insulin pump.

Congratulations BC residents on your new insulin pump program!

Why we need choice

choice is importantWhen I first decided to put my son on an insulin pump I was overwhelmed by the choices.  I wasn’t sure exactly what we needed in an insulin pump but I could get one from Roche or a different one from Animas.  There was one from Medtronic and there was a new pump in town, called Cozmo. Four choices to consider.

How was I going to decide?

With the help of friends! I was part of an incredible online email list that told me which pump they preferred.  I also talked sales reps who quickly became friends! They were all wonderful.  They guided me and told me which questions to ask…both of pump companies and of myself.

How much insulin did we need?

Well back then my son was only 5 and I was throwing out insulin on a regular basis so reservoir size wasn’t much of a concern. I would only fill as much as we would need between site changes.

Did we need reminders?

Heck yes! I had two young children and was very active in their lives.  There was no such thing as a continuous glucose monitor so I was up at all hours testing, correcting, and treating.  I had trouble remembering my name. I desperately needed a reminder of things like site changes and missed boluses.

Did we need more than one basal pattern?

Granted my son wasn’t working shifts at that point in his life but he was beginning his school career.  That meant gym days and sleep in days and hours upon hours of outside play days.  A pump that could switch gears and change patterns based on the day of the week was a definite benefit.

My son was 5 when I began researching his first insulin pump.  He needed a pump that would administer tiny amounts of insulin…much smaller than he would ever use now. That was 15 years ago however, now his needs have changed a lot.

Fifteen years later…

He still needs reminders. He hates carrying anything extra so the more compact the pump the better  He works shifts and is up at odd hours.  A pump that makes basal switches like his very first pump did would be ideal.  He uses a lot more insulin at 20 than he did when he was 5.  A 300 unit reservoir is a must.

This is 2018 however and not 2003.  He can no longer choose a Roche pump or even the AccuChek brand.  He can’t get a new Cozmo because they left the market one insulin pump life ago.  He likes his Animas pump but that is now out of warranty. He is left with two choices…sort of.

He could try an OmniPod but he really doesn’t like them. Yes, he has seen them.  He knows that they are much smaller but they aren’t for him.

That leaves him with a Medtronic pump.  He doesn’t want that either.  It also doesn’t work with the Dexcom that he plans to use for work.

Neither pump fits his lifestyle.  Neither of these insulin pumps have all of the features that he wants and needs.

What does this mean for my son?

It means that he waits.  He still has a working Animas pump and cartridges.  He has two old Cozmo insulin pumps and a few boxes of old cartridges for them.  He won’t rush to get a new insulin pump.  He will make do for the moment and wait for there to be more choices on the market,

Everyone who lives with diabetes deserves choice.

No two people with diabetes are the same.  Even the same person with diabetes will have different needs in an insulin pump over time,  This is why they need choice,  Diabetes is not a one size fits all disease. Every person needs to tailor their care to fit their life at that point in time.

As a wise person with diabetes once said…”Having diabetes is not my choice.  How to manage it should be.”

 

 

18 years of life with type 1 diabetes

18 years have passed and still, I remember it like it was yesterday. March 17, 2000.

The day started out sunny but by the end of it a horrible storm would hit my world and nothing would ever be the same.

We drove through a raging snowfall to take my lifeless 2-year-old son to the hospital.  There we were told that he had Type 1 diabetes.  They would monitor him for the next 24 hours to see if he would live or not.

Thankfully he survived that day but the fear never left me.   Before we left the hospital I was terrified of taking him home. I worried that I would make an error in his insulin and cost him his life.

When we got home, I did make mistakes.  Because he was so young, he didn’t know how to tell me if he was high or low. We didn’t have continuous glucose monitors then either.  If he fell asleep, I would panic.  The meter would be taken out before anything else.  I would clean his tiny finger, get a drop of blood almost as big as the pad of that finger, and apply it to a test strip.  30 seconds later I would finally learn if he was low or simply a toddler in desperate need of a nap.

Over the years he would learn to tell me if he was high or low.  His attitude would sometimes tell the tale for him.  When he short tempered…and trying to kill his brother by throwing things at his head, he was definitely high!

Eventually, he learned how to tell if he was low.  He would come to me and say he felt “weazy” and needed some juice.

We moved from injections to an insulin pump by the time he was 5.  My family couldn’t handle seeing him sitting by himself eating meals at set times when there was a better way. They helped us to pay for that first Cozmo insulin pump.

Our life was changed when his pump arrived.  No longer did we have to deal with 6-8 injections per day.  I was able to allow him to graze.  This was an incredible freedom for a small child…and mom.

Puberty came with its own challenges.  The teen years were much like those of children without diabetes.  There were good times and bad.  Somehow we made it out alive and that is more than can be said for some children with diabetes.

My son is now 20 years old.  He has lived with diabetes for 90% of his life.  That makes me want to cry.  90% of his life has been dealing with injections, infusion set pokes. finger lancing, carb counting, high blood sugars and lows.  He has learned how to workout while managing diabetes  He goes out with his friends at night and as a few drinks all while dealing with insulin, test strips and diet.

My son works in the construction industry and must keep his pump warm when temperatures dip below 30C.  He manages to test and combat lows all while wielding a hammer and trying to get his work done.

He lives thousands of miles away.  His roommate has known him his entire life.  They watch out for each other.  He knows about my son’s “broken pancreas”.  I wish that neither of them ever had to learn what diabetes was or how to handle it but life had other plans.

18 years.  It amazes me and saddens me.  I am so blessed to have a strong, young man who is still doing so well after all of these years.  It fills me with gratitude to think of all of the love and support that has guided me on this journey.  I still wish that he didn’t have to be on it.  I can’t believe that 18 years have passed already.

18 is just a small blip in his life.  I look forward to watching the next 18 years and another 18 after that.  Who knows what technology will have in store for him then.  Perhaps he will live to say “I used to have type 1 diabetes but now I don’t”.  I certainly hope so.

What a parent of a person with diabetes wants their child’s significant other to know

As a parent, there are certain things that I want my son’s significant other to know about diabetes.  My son’s list of important qualities and things that she needs to know is probably quite different.  That list is for another time. This is my list of ideals wants in a partner for a person with diabetes.

I want her to know when my son’s blood glucose levels are out of whack.

In school, he often had teachers who just “knew” when he was out of range. I felt safe because they would make sure that he tested and took care of himself.  She needs to make me feel the same way.

I want her to know to carry glucose with them at all times.

A low blood glucose level can seemingly come out of nowhere.  My son keeps some treats on him but we all know how easy it can be to run out at the most inopportune moments.  His ideal partner, for me, would be a gal who recognizes this and carries a bag filled with candies easily accessible in her purse.

My son would be happy if she carried all of his supplies in her purse too but as I said, that’s a different wish list.

I would love to see his lifelong partner remind him to test at night or at least wake him when he seems restless and out-of-range.

My son doesn’t currently have a CGM.  He once relied on his mother’s inability to sleep to keep him safe overnight.  Now that he lives on his own, he wakes himself at night to test.  I know that he would love to have a break now and again.  A person who would help him at night would be a blessing for both of us.

I want to see his partner know how to help him on days that diabetes is too much.

As much as helping my son at night would be wonderful, we all know that there are days that we just don’t want to diabetes.  When he lived at home, my son would some days just simply hand everything over to me for a day and I would deal with it.  I would count carbs, bolus and test.

I don’t know if he would still want that sort of full-on break but I know he still prefers someone else to put in new infusion sets.  It would be nice to know that she cared enough to learn about his care and help him where he needed it.

I want her to know that diabetes is part of his life but it isn’t what defines him.

Finally, as much as diabetes can be overwhelming and time-consuming, it doesn’t define my son.  I would love to see his life-partner understand this.  I want her to love him for the incredible, handsome, quirky guy he is.

Diabetes is a lot of hard work.  I want her to understand this but not be deterred by it.  It will mess with their schedule.  It may impact his mood but he is strong and deserves only most loving and supportive partner.  In return, she will get a pretty amazing guy.

 

If you can live with an elf on the shelf for a month you can manage the holidays with diabetes

diabetes management over the holidays

Do you have an elf in your house? Is there a little creature living with you who gets up to nightly shenanigans and watches your every move? I am here to tell you that if you can live with an elf on the shelf for a month, you can manage diabetes over the holidays!

Seriously.  That little guy brings a lot of pressure to a family…and so does diabetes but you’ve got this.  Here are a few tips that are going to help you find your way.

WAG it

Wild a$$ guess when need be! If you don’t have your scale or your measuring cup around.  If you aren’t 100% sure on what exactly is in that food item, wing it! Chances are that you know more about carb counting than you think and you will probably do fine.

You can also ask Google or download a calories counting app like the Calorie King or My Fitness Pal.  These are great tools when you are completely out of your element.

Pre-bolus

If you have a child with diabetes who would love to graze their way through the holidays, give it a try! To help with your own sanity however, I would suggest that you pre-bolus before you set them loose.  Ask them what they plan to eat, set it all on a small plate and then bolus for as much as you are certain they will eat.  (This can be done on injections or a pump)  Give them the insulin that will cover at least half of the food (or all if you know that they are good eaters).  Remember that they will most likely be excited and active so its okay to inject a bit less rather than more.

Check…a lot or use a CGM

To help survive the holidays with diabetes, make sure that you are checking your blood glucose levels every two hours when you are at events or gatherings with a lot of food and/or excitement.  If you have a CGM, make sure it is calibrated properly and close by.

Put one person in charge

To avoid parents double bolusing or giving extra insulin, make one person in charge of an event.  The other parent can relax and simply enjoy the event.

Schedules will be thrown out the window. Adapt

Chances are very high that all of your careful scheduling will go out the window over the holidays.  Concerts will run late.  Dinners won’t be on time.  Chaos will reign supreme.  That’s okay.  This is only for a very short time.  Learn how your insulin works and do you best.

Do your best

That last line was worth repeating.  Your best is all that you can do.  If you child survives and has fun, you are a complete success!! It is that simple.

The holidays are a time to create wonderful, loving memories.  Don’t spend them wrapped up in readings and insulin.  Test every couple of hours, watch for adrenaline crashes and find time to breathe.

It will all be worth it!

Happy Holidays!

It’s okay to cry…or scream..or just take time for you

diabetes is hardDiabetes is hard.  Whether you live with the disease or you are the parent of a child with diabetes, diabetes is hard! I know, I said it twice because it is true. It can be exhausting and overwhelming. There is never truly a time when you can relax and say “whatever will be will be.”

There are times when you want to relax. You want to throw in the towel.  There are times when you want to simply say “ENOUGH!!!” and hide under the covers for a the day.  I am here to tell you to do it! Seriously, take a minute or an hour or a day and just throw in the towel so that you can pick it up again with more strength than you had before.

It’s in your best interest and the interest of those you love to take time for you.  Take time to just let it all go.  Here are five easy ways to reset yourself so you can continue on your journey with diabetes.

1. Hide out in the shower.

The shower is an amazing place.  You can lock the door.  The water pouring over your body can be calming and soothing.  It washes away your tears gently and without judgement.  The sound of the running water also drowns out your anguish.

When things seem bad…When you are tired and just want a break… take 5 minutes and hang out in the shower.  Cry or vent.  No one needs to know. No one needs to see.  You can simply let out all of that pent up anxiety  and allow it to flow down the drain.

After you are finished crying and yelling, you can dry off and get on with your day!

2. Go for a walk.

Ideally, go for a walk by yourself but if you can’t take the kids and just go!  Power walk at first until you have spent all of that stress and tension out of your body.  Let all of your frustrations be released in your strides. Slowly let everything go until you can slow down and enjoy the scenery.  Breathe and just let it be.

Your heart will thank-you and so will your psyche.

3. Pass the buck.

Whether you have diabetes or you are the caregiver, let someone else deal with things for an hour or a day.  Let them do the testing and the injecting. Give the meter or CGM receiver to a trusted companion or family member for a bit.  Allow them to deal with things in their own way.  Allow yourself to forget just for a bit.

It can be hard at first.  Diabetes is so all consuming but it can happen.  Don’t be concerned if the other person is  doing things differently than you would.  Let go.  As long as no one’s life is in danger…let it go.

I have done this for my son before.  There would be a day when I would do all of the testing, bolusing and carb counting. He would simply hand me a finger or his pump.  Diabetes was not something that he was going to actively concern himself with managing for that time period. He loved the break.

4. Enjoy a date night.

If you are a parent of a child with diabetes, this is super important.  Make time for you and your partner.  If you are single, then make time for you and your close friends.  Take time once a week or at least once a month, to focus on relationships.  Leave diabetes in the hands of someone you can trust.  Do not spend all of your time looking at your phone or texting home.  Focus on enjoying yourself and recharging your batteries.

5. Meet up with other D-peeps.

This one may seem a bit strange.  If you are overwhelmed by diabetes, why or why would I suggest that you hang out with other people who are just as stressed as you? Because they get it!

Seriously, meeting another person who lives with diabetes can be so liberating.  They truly do understand carb counting and pump problems.  They  are the ones who understand the A1c report card and so many other aspects of your life.

Go to conferences, events, or socials.  Talk to that co-worker who also has diabetes or that Facebook friend you met in a group.  Share with each other.  You won’t just talk about diabetes but they will understand that diabetes factors into so many other aspects of your life.

These are just a few things that can help to relieve some of the stress of living with diabetes.  There are many other things that you can do.  If you reach the point of feeling completely overwhelmed, please consider talking to your doctor or a therapist.  Diabetes is hard.  You need supports.  Make sure you find them and use them for the sake of you and all of those who care about you.

Why November 14th is Special

Banting birthdayNovember 14th is  World Diabetes Day.  Those who live with diabetes often remark that every day is diabetes day! That is true but November 14th is special.

The 14th is the day that Frederick Banting was born. For those who don’t know, Banting was a Canadian born medical scientist.  He received the Nobel prize for his work isolating insulin for therapeutic use with his colleague Dr. Charles Best.  He is the reason that my son is alive and thriving today.

Before 1922, a person with Type 1 diabetes was not expected to live long. The only way for them to survive was on very strict diets and those diets often left them malnourished.  Injected insulin came along and changed that.

The incredible before and after image of Leonard Thompson shows us just how dramatic of an impact insulin had on the lives of those living with diabetes.

From https://www.trumanlibrary.org/histday/insulin/impact.html

While my own son wasn’t as emaciated as poor young Leonard, he was gaunt and skeletal before he was diagnosed.  He had been a thin child.  He had been sick but seeing him teetering in the bathroom after he began to receive insulin sent me into shock.  His skin was hanging off of his tiny body.  It had happened so quickly.

Thankfully on November 14, 1891 a man was born who would find this miracle elixir.  He would discover a way for my child, and millions like him, to receive the insulin that they were lacking in their own bodies. Dr. Banting gave them their lives back.  He gave parents back their children.

Those of us who use insulin, no that it is not a magic pill. We understand that it must be respected.  People living with diabetes quickly learn how the smallest doses of insulin can have life-threatening consequences. Despite the risk, the reward is incredible.  We have our children, our partners, and our friends.  They thrive, contribute and enrich our lives.

On this day we say “Happy Birthday Dr. Banting!! Thank you so very, very much for giving us this incredible gift of life.”

 

The DTC…We have come a long way. We will win the war!

we will win dtc warThe past few weeks have been incredibly busy and I have never been more proud! I have been battling the Federal government over the Disability Tax Credit since the early 2000s.  There have been victories and most recently there have been setbacks but we have come a long way!!

Let me give you a bit of history.

Back in 2002 or so, a lady named Shelley Tyler took the Canada Revenue Agency to court and won.  She believed that her son was eligible for the Disability Tax Credit because they took an inordinate amount of time to feed him and keep him alive.  Her son had type 1 diabetes.

Mrs. Tyler was kind and shared her experience with others.  I used some of her work in preparing my own application.  Others did as well.

More and more families were applying for the Disability Tax Credit.  They were still being turned down, but even more where refusing to take no for an answer.  They were taking their cases to Tax Court–and winning!

Families like the Chafes were winning the argument that insulin therapy was administered 24 hours a day when using an insulin pump.  This led to a year of qualification for all pumpers.

(The irony of recent comments that the increased use of insulin pump therapy is why applications have been denied is not lost on me. )

Changes were happening.  The diabetes community was roaring.  We were a grassroots group.  The Canadian Diabetes Association was only in the infancy of creating a dedicated Advocacy Office and JDRF was focused on funding research. That was okay because the diabetes community was powerful in its own right.

Together we rallied. We worked on court cases.  Friends and family members contacted their MPs and demanded fairness. The diabetes community was represented at the Federal review of DTC fairness.

The result was legislative change.  Children with diabetes were now given the tax credit based on a certified diagnosis of type 1 diabetes.  Adults were also allowed the credit but their means test was a bit more strict.

Recently there seems to have been a change in how disability tax credit applications are handled for people with diabetes.  We have discussed it before.  One thing hasn’t changed however and that is the power of the diabetes community.

Thanks in part to the power of social media,  the community voice is louder than ever and I couldn’t be more proud!

Diabetes Canada is sending well-spoken, knowledgeable individuals to meet with CRA and voice our concerns.  JDRF has been delving into the issue for months as well.  Together they are creating a powerful voice.  Behind the scenes, there are many more grassroots groups working together.  Everyone is pushing the same  message.  “Diabetes is a 24/7 job.  People living with insulin dependent diabetes take more than 14 hours per week to perform life-sustaining therapy.”

The message is getting out there.  This issue was all over the media.  My Twitter feed has been blown up with articles and Tweets.  I am proud! The diabetes community is coming together.

Some members have voiced their frustration. This should have been finished years ago.  People living with diabetes have enough to deal with.  Fighting their government for a credit that they obviously qualify should not be another stressor. They are right of course.  I totally understand their get their pain.

I have been in this battle since the beginning.  It’s been a long one but please don’t lose hope! This is not a war that is lost.  It is a battle that will see victory.

The diabetes community is a powerful voice.  Canadians with diabetes are coming together in record numbers.  We are using that voice to let CRA and the Minister of Finance know that we are not prepared to back down.

Now is the time to keep the momentum going.  Write your letters to your MPs. Answer the call when one of the diabetes organizations calls looking for your story.  Our voice is strong.  We have come a long way and together we will finally win the war.